I so feel prayers being answered in our life. Hayden is so so so sick. Yet he is still developing bonds, memories, and enjoying each moment. We had a few days after our last terribe Doctor's appointment that I just wanted to hybernate. Thanks to each of your prayers, we are back to more smiles and less tears. Thank you friends for your faithful love for our family. Pictures above are from our recent beach trip. As you can tell Hayden loves his home away from home. We hope to make one more trip before we conclude our summer vacations. Well back to Hayden. Hayden is still having seizures. UGH REALLY. NO WE CAN NOT CATCH A BREAK. I refuse to give up on a believing that one day we will have a seizure free day on Earth. I have faith that God is going to grant us this simple miracle in his difficult life. We added a new medication last Monday. We have seen a seizure decrease. We are probably around 10 a day vs. 25 plus. This is a huge difference. We are potentially adding another medication this week. Yes, my brain is full of times, dosages, and adminstering meds. We had many friends bring us meals this week. Thanks to each of you for a huge help. Hayden is getting more difficult to load up and take to town. We are beginning to stay home a little more. He is just so heavy. My back hurts if I do something without Brent's help. Plus, Hayden is not handling the Mississippi Delta heat very well. Each day, I wake up and smile. God is giving me another day. Thank you God for allowing me more moments with Hayden. THe problem is I am always going to want just one more day. I wish I could just stop time. I love my life. I love everyone in it. I have such awesome friends and family. We only surround ourselves around caring, loving, and nice people. It is awesome to have SOOO many loving friends that are helping us with Hayden. The cards, random suprise gifts, the meals, the calls, the emails, the messages are so appreciated. The Mississippi Delta really knows how to care for people that are hurting. We are so blessed to call Greenville our home. The friends, family, and strangers that care for our angel make it worth it! We continue moving forward with a smile on our face thanks to each of your caring words and attitudes.
My family and I were in the emergency room at DRMC one night when your family came in. I didn't know you or know Hayden's story (I was referred to your blog through a friend several months later) but God placed your family upon my heart and in my prayers from that first night in January. Thank you for sharing your family's journey with us through your blog so that my prayers for all of you can be more focused to your immediate needs. I pray all the best for Hayden and your entire family.
ReplyDelete