Pray for HOPE

Well it looks like I am running into one problem after another with blogging on my IPAD. If anybody knows how to upload a photo please let me know. It will not let me select a file. Brent and I felt much better yesterday after being completely honest with each of you about Hayden's condition. We would like to thank each of you for your encouraging calls and text messages yesterday and today. So many people believe that I am strong. That I am continuing to hold onto HOPE. I think a lot of people think that we are "alright." I would like for you to pray that Brent and I can regain our sense of HOPE. We can void the conversation in which the Doctors had with us on Friday out of our memory. It is hard to place a smile on your face and continue to move forward when you know the outcome is so so so poor. Yes, we are exhausted physically and mentally. We can not go ten minutes without thinking about it. I am not sure about Brent but I feel like worries are consuming my life. PLEASE PLEASE pray that we can get our encouragement back soon. Please wear your Hope For Hayden bracelet and pray that NOBODY loses HOPE for Hayden. Please pray that God touches Hayden with a great big miracle. As for today, Hayden has had a pretty good day. We have had minimal seizures that we have physically seen. Haydens officially in a 24 hour seizure. Luckily, we are not seeing seizures 24 hours a day. I would say that I have only seen 3 or 4 today. Praise God. Hayden did a good bit of resting today. Thank you Jesus for allowing his precious bones to rest. Yes, we place a smile on face. Yes, we are alright. What are we suppose to do? We can not just give up. That is why I am begging that you pray that we can void Friday's appointment out of our memory before it consumes our life. It is not only consuming mine and Brents life but all of our close family that check on Hayden often. All of our friends that love Hayden like a son. I am so thankful for Megan, Whitney, Lisa, Lauren, Holly, Leathe and Kelli for being the best aunts in the world. I am so thankful for these girls have truly treated Hayden like a son. I know each of you will be awesome mothers one day. I can not wait to treat your kids like my own. As for your significant others, I am so thankful that they are not scared of Hayden. I am so thankful that they LOVE our angel with all of their hearts. I am so thankful that yall have spent a year including Hayden in weekend activities instead of just forgetting about us. A simple thank you will never repay this. These friends need prayers to as they are worried about us and Hayden. For Mrs. Dana, for a year of faithful scriptures and letters. They have often arrived on the best days. For all of my mothers friends that have cooked us fabulous meals, I am going to blame yall for my weight gain. HEHE not really, thank you all. For Mrs. Nita, for knowing what it is like and always saying the perfect things. These are just a few of the people that have really stepped up to the plate to help us get through this rolllercoaster. The rollercoaster is far from over because we are not giving up HOPE. We are going to pray to regain it! For our parents, grandparents, Jacob, Andrew, Robby, and Megan.... Each of them are trying to hold it together for Brent and I. It is not easy because they are watching us hurt along with loving sweet Hayden. Please pray that each of them can feel a sense of Hope instead of helplessness. I have said a dozen times before that it sucks to get a diagnosis with no cure because we can not fight. Cancer comes with a fight. ASLD comes with a timeline. NOT FAIR but you know what life is NOT FAIR.The one thing that I do know is Life is a Gift. Life does go on. I know that Hayden is the cutest kid on Earth. I know that he will always be my child. I often deal with the fact of loving the fact of being a mom. The fact of being a mom to a heaven angel but not on Earth is like taking a hammer to my heart. Luckily, I know that Hayden will be waiting on us one day with open arms. Guess what the best part of this is? He will be holding his head up and running free without SEIZURES. Praise God I HATE seizures. With all this being said, I just want you to know that even if we "look" happy we still need prayer for HOPE and ENCOURAGEMENT. Please contiue to pray that this disease slows down so we can have a rainbow and sunshine birthday next June. Thank you for your faithfulness.