We Need Your Prayers! Slow down AsLd!

1st off I would like to apologize for the format of this blog. My lap top is dead and I'm typing on an iPad. Not easy! I will be purchasing the key pad today. I hate to share information on my blog unless it's exciting and upbeat. After all we have spend 13 months fitting in a lifetime. We have had family help us make memories. We've had some awesome friends that have never left our side. They've encouraged us, hugged us, cooked for us! Wow our friends are now considered family. I have best friends that I have never met. Christine, Jolene, tracy, and Courtney, y'all have been the first to know every detail of Hayden's progress. Why? Because y'all have been here for us daily. Not only when it's convenient for you. You have checked your emails daily! Thank you for being my new best friends. I would like to start by saying thank you for your faithful prayers. We are more appreciative than you will ever know. Thank you for your encouraging cards. Thank you for your donations to Hayden and his honor. Now onto specific prayer request and discouragement: 2 weeks ago Hayden had an EEG. The results were worse than the EEG in April. We added a medicine. The medicine has been unsuccessful. We went back Friday for another EEG. Dr Davis said he would call next week with the results. Unfortunately, we had a seizure that scared the whole EEG team. The results shocked them. They placed Hayden on oxygen. They called Dr. Davis into talk to us. The results showed significant progression in the past 2 weeks. SLOW DOWN ASLD! Please pray!!! We have known Since last July that Hayden's prognosis is early infancy. Unfortunately, I can not freeze Time. I have recently heard of a 9, 5, and 3 year old with asld. I HOPE Hayden receives this amount of time on Earth. Sadly, tomorrow is not promised. Not only for Hayden but all of us. The doctors can't tell us anything other than his disease is progressing. We need you to pray for this. Hayden is our angel. I'm not ready to give him up. The thought of him holding his head up makes me smile. The thought of him playing with toys brings a tear to my eye. The thought of him running around with all of his angel friends gives me HOpE. The problem is myself, brent, and the people that have shown Hayden love. We have so many more memories to make. So many more smiles to smile. So many more kisses to give. Please pray for peace and understanding. Please pray for our entire family. We are remembering God is good all the time no matter what. We are so thankful that God chose us to be the parents of his EArth angel.