HAYDEN IS LEARNING HOW TO USE AN IPAD AT AN EARLY AGE! SHE IS TAKING EXTRA GOOD CARE OF HIM!
Friday morning, he asked me if he could go to work with me. I have an amazing boss (my daddy)! Since, we are not too busy this time of year, he said bring him on! We had such a good day in Lake Village. He did sleep most of the day. He was so excited because he got to go see his Uncle Todd and Aunt Lauren that night. We had a great dinner from Lillo’s. As we were heading home from dinner, I realized we had only had four seizures all day! What a great feeling! We had just a touch of heaven on Earth! Thank you Lord for such an amazing day!
A HARD DAY AT WORK!
Saturday, we had a fun day planned! He had to go to his friend Reed’s birthday party. He was so excited to see his friend Reed and his cousin Chi-Chi. He sat in the chair as the kids played. He loved watching all of them. Hayden reminds me to not be sad that he cannot play with the other children. He just wants me to dress him in style. We got dressed in his cute birthday long all. He was so excited to help Reed celebrate. He was even more excited about what Reed had chosen to do. Reed and his family decided to donate crayons and coloring books to Blair Batson. They had such a great turnout. Hayden knows that all of his Batson friends will have a fun week coloring pretty pictures for their family. Look out Batson, even a two year old is making a difference in the hospital! Thank you Reed for donating crayons and coloring books to the wonderful children in the hospital! As you can tell, all the children were thrilled to be a part of this awesome donation! What a perfect day for a birthday! Hayden was so relaxed that he went the whole birthday party without any seizures! Praise God for another touch of heaven on Earth. Hayden was pretty sad to leave his friends at the party…. He started seizing a lot once we left the party. He had a pretty large amount of seizures Saturday afternoon. As I have always said, we live a rollercoaster type of life. He was perfect though! He even convinced his NONA into buying him two pairs of shoes!
HAYDEN IS READY TO PARTY! HE IS SO GLAD THAT HE COULD HELP READ CELEBRATE!
HAYDEN WAS SO EXCITED ABOUT HIS WHISTLE AND CAR PARTY FAVOR! HE WAS KIND ENOUGH TO LET HIS COUSIN CHICHI HAVE THEM!
Sunday morning, he woke up screaming at 3. He was seizing a lot! Man oh Man can this poor baby not catch a break! I was determined to let him enjoy the beautiful day outside. We met his Aunt Meg and Cousin Chichi at Black Bayou. We played on the Rhino, wagon, tractors, etc. The boys had a large time! Hayden was worn out when we left! He went to sleep for the night. He was still seizing throughout day. Unfortunately, he woke up screaming in pain again at 3 this morning. Please Lord allow this pain to pass. Allow this child to continue to feel peaceful. We are praying for more Heaven like days in our future. A weekend with friends and family is a weekend of NO WORRIES. A weekend of MEMORIES! This spring like weather makes us enjoy each day fully! GOD IS GOOD ALL THE TIME NO MATTER WHAT!
HAYDEN ENJOYED THE SPRING LIKE WEATHER. WE HAD A GREAT DAY OUTSIDE!
The following sums up our weekend: YOUR LIFE SHOULD BE FILLED WITH LOVE. GOOD IS LOVE THOSE WHO LIVE IN LOVE LIVE IN GOD, AND GOD LIVES IN THEM. THIS IS HOW LOVE IS MADE PERFECT IN US. 1 JOHN 4:16-17A. You were born with the love of God within your heart. When you live in the love of God, you will naturally live and grow in that same model. When you emulate God’s love, those around you respond to your care and thoughtfulness. When God’s love is perfected in you, the confidence you have in Christ and your Christian walk will naturally flow to others. There is nothing more important than the love you share with others.
*** Remember to wear JEANS for GENES on the 29th! We hope to continue to raise awareness for all of the rare genetic disorders in the world. We are raising awareness for the rare disorders that have zero research, no cure, and no treatments. We must find cures for all the suffering babies in the world!
It's RADIOTHON week--we're almost ready to go live on Wednesday at 6 a.m. We hope you'll join us by listening to your favorite Radio People station. You can go to your favorite station's web site today to donate or become a Miracle Giver ($15 a month). Help kick off this great event by giving today. Participating stations include Mix98.7, Y101.7, US96.3 and Meridian's Kiss 104.1, 97OKK, 105.7 The Beat and Q101.
*HAYDEN WILL BE ONE OF MANY STORIES THAT YOU WILL BE ABLE TO HEAR THROUGHOUT THE RADIOTHON. THANK YOU LORD FOR ALLOWING US THE OPPORTUNITY TO BE BLESSED WITH AN AMAZING HOSPITAL!
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